Inspiring Lymphedema Patients in the Public Eye
Deborah Cordner's story: http://games.crossfit.com/article/telling-her-story-deborah-cordner
Kathy Bates: speaking at NIH Conference in Washington, DC: https://www.youtube.com/watch?v=NUN7YYYwnbs
Amy Santiago: https://lifewithlymphedema.com
Canadian Lymphedema Associations
The Canadian Lymphedema Framework (CLF) is an academic and patient stakeholder collaboration which is part of an international initiative aiming to promote research, best practice guidelines and lymphedema clinical development, worldwide.
The BC Lymphedema Association:
Alberta Lymphedema Learning Association:
Lymphedema Association of Manitoba:
The Lymphovenous Association of Ontario:
Lymphedema Association of Quebec
Lymphedema Association of Newfoundland and Labrador
Atlantic Clinical Lymphedema Network
Pacific Medical Training-Lymphatic System: https://scribeschool.net/lymphatic%20-system-info-for-scribes.html
Lymphatic Education & Research Network www.lymphaticnetwork.org
The psycho-social Aspect of Lymphedema http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2904185/
International consensus: the best practice for the management of lymphedema:
A glimpse of some of the happenings at the NLN conference:
Home page at Lymphovenous Canada — Links people in Canada with dysfunctional lymphatic systems with health care, Canadian lymphedema framework and Canadian treatment centers:
Great site for educational purposes, picking up great tips on self care, the lymphatic system, how lymphedema is treated, lymphedema emergencies & complications and much more:
McGill lymphedema research program, Canadian Lymphedema Framework:
Lymphedema treatment programs, information on lymphedema, complications, personal stories exercises, children with lymphedema and more:
National lymphedema network - information on lymphedema for patients and professionals. Also exercises for lymphedema patients:
Clinical practice guidelines for the care and treatment of breast cancer: secondary lymphedema:
The Lymphedema Association of Quebec:
Breast cancer information, resources and support for Canadian women:
Breast Cancer Lymphedema Management:
Explains the different types and stages of lymphedema:
Information on lymphedema and shows pictures of lower limbs affected by lymphedema:
Explains lymphedema also showing a diagram of damaged lymph nodes:
Throughout the year the Hope Cancer Centre - Events provides workshops and presentations on topics of special interest to cancer patients, families and care partners.
Lots of information on lymphedema. Shows pictures and explains different stages of lymphedema.
Your Canadian Lymphedema Framework
The important work of the CLF can only be achieved through partnerships with stakeholders, including: persons living with lymphedema and related disorders, community organizations, health care providers, educators, researchers, government, industry representatives, insurance companies, and any other individuals or organizations with an interest in lymphedema.
In the coming weeks, the CLF will begin to share updates about their activites, as well as related news and events of importance through a new email newsletter. If you would like to stay informed of the CLF's activities, why not sign up to receive the newsletter.
Thrive Alive Foundation, a very special not-for-profit charitable organization (registered with CRA) committed to providing resources and assistance to people in need for their cancer treatments not covered by government or healthcare plans. Unique in Canada, Thrive Alive Foundation was founded in response to a strong and growing need nationwide to help alleviate the individual financial burden of cancer care, oftentimes resulting in bankruptcy and poverty, for people in need; people who would not otherwise have the opportunity to access the life-saving treatments that others do. Our mandate is Canada wide and our vision is to make cancer treatments available to everyone across Canada, regardless of age and income.
MD, therapists and patient site. Resources to help patients cope with lymphedema. Books, bandages, videos/DVDs, compression garments etc.
Patient resource site, authored by Joachim Zuther, USA
Lymphedema Institute has excellent videos on bandaging of limbs. Well done and informative.www.lymphedemainstitute.com
Patient and therapist resource site, USA
Patient resource site, USA. Generated by people who have lymphedema.
MD, therapist and patient site, International Lymphoedema Framework.
Patient and therapists site. Good links to other services and educational material.
Aqua Lymphatic Therapy (ALT) The Tidhar Method (Dorit Tidhar, MScPT, Montreal, Quebec) An alternative approach to controlling lymphedema.
An interesting article from the NLN
A 25 minute Ethnodrama performance. From Dissemination to Intervention: New Directions in Knowledge Translation for Breast Cancer Survivorship.
Exercise while sitting in a chair
International Lymphedema Framework
Dr. Stanley Rockson - Lymphatic System: Inflammation & Lipedema - LE&RN https://www.youtube.com/watch?v=3g-lbEc3t8g
A dedicated platform for the lymphoedema community
www.lympho.org write up:
For Caregivers, Family and Friends - National Cancer Institute
Weight Lifting and Lymphedema: Clearing up Misconceptions
Written by Kathryn Schmitz, PhD, MPH, Associate Professor University of Pennsylvania: http://www.lymphnet.org/pdfDocs/Weight_LE_Misconception.pdf
Lymphatic Vessels Discovered in Central Nervous System
Lipedema Project: www.lipedemaproject.org
Study shows nanofiber scaffolds could treat lymphedema by rerouting lymphatic system around blockages
"Comprehensive Guide to Lymphedema in Children" - A comprehensive caregiver's guide to pediatric lymphedema which includes a review of the latest research on how kids with lymphedema differ from their adult counterparts: http://torontophysiotherapy.ca/comprehensive-guide-lymphedema-in-children/
"Patient guide to Head and Neck Lymphedema Following Cancer Treatment" - A comprehensive patient guide to head and neck lymphedema, with special considerations for this population. It also includes a lymphatic self-massage instruction video: http://torontophysiotherapy.ca/head-and-neck-lymphedema-following-cancer-treatment/
"Patient Guide to Lymphedema Symptoms, Prevention and Management" - A general patient guide to lymphedema, including a lymphatic self-massage instruction video: http://torontophysiotherapy.ca/lymphedema-symptoms-prevention-management/
Numerous other articles on various lymphedema (http://torontophysiotherapy.ca/category/lymphedema/),
and cancer rehab
Busting With Energy is Saskatchewan's only breast cancer survivors dragon boat team. It is founded in 1998 and is based in Saskatoon. BWE has approximately 30 paddling members of varying ages and abilities. It is a volunteer-run organization and its goal is to encourage participation to improve the well-being of breast cancer survivors. BWE welcomes new members! For more information please visit FaceBook or website: www.bustingwithenergy.com or email at firstname.lastname@example.org